Following telephone conversations with Professor Beverley Hunt O.B.E., a renowned medical expert in the areas of thrombosis and haemostasis, and Kate Hindle who is the Charity Manager at APS Support UK (the Hughes’ Syndrome charity), The Sonia Marsh Trust has agreed to help sponsor one of the strands of pilot research that are being carried out into the many serious health issues caused by Hughes’ Syndrome.
We have pledged a minimum of £4,000 towards a small pilot study – it is only because of your kind and generous donations to The Sonia Marsh Trust that we are in a position to make this pledge.
APS Support UK gives a research grant of c£5,000 each year to fund a small pilot study that leads to applications to major funders for large-scale research trials into the health issues caused by Hughes’ Syndrome. It also gives several smaller grants. The next round of bids for these grants is early next year and they will be scrutinised by a panel of medical experts who will then advise on which bids should receive the funding.
The Sonia Marsh Trust has agreed to transfer at least £4,000 to APS Support UK at the end of December (2021) in time for the next round of bids – although we are hoping that by the end of December we may be in a position to match the APS Support UK’s £5,000 grant. To this end, we have extended the closing date of our Just Giving Page (The Sonia Marsh Trust) until 5th October 2021.
We cannot thank you all enough for your generosity thus far, and it would be overwhelming should we be able to reach our stretching target of £5,000 to fund a pilot study in the name of The Sonia Marsh Trust; a pilot study that may initiate major research that could eventually lead to increased survival rates, and to reduce the effects that Hughes’ Syndrome (antiphospholipid syndrome) can have on quality of life.
Thank you The Marsh Family